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Living with Alzheimer Disease and Other Types of Dementia: Stories from Caregivers
People with Alzheimer Disease or other types of dementia often face years of memory and thinking problems that eventually require help from others to assist with daily activities. An estimated 83% of people caring for older adults in the US are family members, friends or other unpaid caregivers. People providing care may have emotional and physical stress, or financial burdens, especially when caring for someone in the later stages of the disease. Narrative Inquiry in Bioethics sought first-person stories of the challenges, struggles, and joys of providing care for family members or another close person with Alzheimer’s disease and other types of dementia. These stories were published in the summer of 2020 but are currently only available to subscribers.
“In different ways, all the authors of these stories observe and recount details that only a family member could know. They create portraits of the person living not only in the present but also in the past, often at the same time.”
To read an open-access story from the collection click here.
The NIB Foundation is raising funds to publish VOICES Living with Alzheimer Disease and Other Types of Dementia: Stories from Caregivers. Our goal is to raise $10,000. This amount will go toward the cost of producing original cover art, paying the press to make the issue open access, developing a teaching guide for providers and stakeholders, creating a webpage, and systematically disseminating the issue and teaching materials.
Click here to donate.
Enter the amount you wish to contribute and then select “Alzheimer Disease and Dementia Honor Page” from the drop-down menu. If you would like to donate in honor or in memory of someone, please add your honoree’s name exactly as you would like it to appear in the issue.
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* The NIB Foundation is a 501(c)(3) nonprofit public charity (EIN: 27-1069500). Your gift is tax-deductible as allowed by law. We will make a good faith effort to raise funds to publish VOICES. If donations exceed the cost needed, or the amount raised is insufficient to cover the cost of a particular issue, funds will be allocated to the Foundation’s general fund so that we can continue to foster education and research in bioethics and related fields through publishing and other activities.